Fae – The Beginning of the End

My outpatient psych program has set my graduation date for August sixth.  Although I was terrified at the prospect several weeks ago when my health insurance began threatening to end payment, I am starting to feel as though I’m going to be ready to leave the program, which is probably exactly where I should be right before graduation.

The end of last week was the end of the health insurance, and GenPsych has been nice enough to extend a few weeks for me without charge, as they feel I’m not ready to go yet. My extended in-law side of the family is in Lake George this coming week, and I’m being allowed to go mid-week to the end of the trip, which is wonderful, because they could have refused me permission to go. My argument was that I would be able to utilize the tools I have to make it through the week, and also that having my family away on vacation and not being able to spend any of it would be counter-productive to my progress. They agreed, and I’m taking a train up and meeting them. Half the week sounds like just about the right amount of time to me – I’ll get to spend time with my family, but won’t be overwhelmed. I can also take time for myself without feeling guilty or judged, as everyone knows where I’ve been this summer and what I’m going through. I’ll come back and attend classes for two weeks before graduating.

The anxiety and depression are still present, but don’t feel as though they are the major factor in my life. The doctors say that I’ve been dealing with this all of my life, and even though getting clean and sober in 1989 has helped, and the cognitive therapy I’ve done by myself all these years also helped, I need to expect to live with a degree of this for the rest of my life. As long as I can use the tools I’ve been given to combat the majority of it, I think I can do it…especially with realistic expectations.

This week will be a good test for me, and I’m looking forward to the psychological challenge as well as the beauty of Lake George, and trying to be present in the moment and enjoy myself up there for once. I am hopeful that I’ll get the most of the trip this year.

Fae – New and Exciting Ways to Mess Up Our Kids

There are parenting aspects to this mental health journey I’m currently on. To the point, the fact that I can’t be home with my kids this summer as planned because I’m in the Intensive Outpatient Program three days a week. What’s really getting to me is that they are both dropping to the lowest common denominator with this…they’re sitting around all day when I’m not here watching TV and playing video games.

I have them signed up to work Community Service hours this summer, and I’m trying to find things for them to do while I’m not here, but I don’t want kids in my house when I’m not here, and I’m worrying about the kids wandering the neighborhood; well, more Gillian than Aidan, he’s 15 and I trust him to make good choices. I trust Gillian’s choices too, but at 12 years and 80 pounds, she is so tiny I’m still afraid she could get grabbed. Even knowing she screams louder than a siren, I still worry. And she’s isolating, not wanting to spend a lot of me with friends. I can set up playdates for her, but I’m not around a lot to reciprocate, and I’m trying very hard not to let local parents know what I’m struggling with right now. I don’t want it to effect how her friend’s parents feel about her, and we live in a very small, suburban area.

The other aspect that I need to take into account is that I haven’t been present even when I’m present. I haven’t been emotionally or even mostly physically available to them, I’ve been so depressed and detached. or anxious and distant. I’ve been learning skills to stop this negative behavior, and change it for the better, and I’m already incorporating it in the time I have with them.

How badly am I damaging them while trying to get well? Is it better that I’m *not* here while I’m not well? They’re more or less used to me this way, sad as it seems. These untreated issues have persisted for years. I suppose the damage is done, and the summer is almost over, but I feel such deep sadness at the thought that so much time has been wasted with me unable to connect to my family. One thing I’m told over and over at my program is to stay away from the ‘coulda’s’ and the ‘shoulda’s’ and the ‘woulda’s', so I will try to concentrate on the positives and know that I’m doing better today than I did yesterday, and hope that tomorrow I’ll learn even more skills to bolster my parenting.

My therapist has told me that they’re not out of the house yet, so there’s still time. I need to make the most of that time to reconnect to the people I love, and believe that it’s not too late.

Fae – The Shame of it All

We’re still riding the Mental Illness train here on the blog, people. If you know me, I think you’d never describe me as “one note”, but this is such a huge part of my life right now that I can’t see the forest for the trees (the Pecan tree for the nuts?:)

When all of this came down, and I knew that I was going into an Intensive Outpatient Program, I spoke with my sister-in-law about how to handle the family aspects of the situation. She is a nurse, quite liberal, and often a good sounding board when I’m not sure about what to share with my in-laws. They are a very conservative bunch, and have the Irish-Catholic sensibility of “Let’s not talk about it” as opposed to my Jewish “Let’s over-talk everything”.

This pearl of wisdom dropped out of her mouth: “If you had something wrong with your kidneys, everyone would be concerned and want to know what they could do to help…Why should this be any different? If your kidneys were damaged, it wouldn’t be your fault. Your brain chemistry is damaged. What is so shameful about that? It’s not your fault.”

First, did you grow up in the same family that my husband did? Secondly, you’re right…What *is* so shameful about mental illness? I’m not walking around muttering to myself (well, not most of the time..). I leave the house fully dressed (albeit often without a smile). I’m not a danger to myself or others (except when I run with scissors).

Elyn Saks, professor at the USC Gould School of Law, wrote an article on why mental illness is so stigmatized for the Huffington Post Healthy Living edition. Having suffered from Schizophrenia for 30 years, I comfortably site her as a reliable source.

People who wouldn’t dream of saying a racial or ethnic slur glibly talk about nut cakes, lunatics and crazies. Perhaps they stigmatize the mentally ill because society always marginalizes people who are different. Or people may blame the person, not realizing that mental illness is a no-fault brain disease that you can’t just will away. Then again they may feel unconsciously that they are to blame. Finally, people may have an unconscious fantasy that mental illness is actually contagious — so one must stay away.

This is not just an academic exercise for me. I have struggled with schizophrenia for more than 30 years. My outcome has obviously been different than the accused gunman’s, but I still suffered stigma. Possibly, like him, I was very resistant to the idea of being hospitalized when I was first ill. How could I bring such shame on my family and myself?

Friends sometimes looked confused or scared when I told them about my illness; and I lost some friends, which was very painful.

So, I understand first hand the effect stigma can have. Stigma is out there and it makes people feel damaged, lesser. It encourages people to be in the closet when being able to get help from friends, when one is suffering, is very important. Stigma’s worst effect is that it deters people from accepting their illness and agreeing to treatment. If mentally ill people didn’t have the added burden of stigma, maybe more of them would seek treatment…

How can we combat stigma? More people coming forward to put a face on mental illness is important, though one must take care when doing this. A media that puts violence committed by people with mental illness in context — most people with mental illness are not violent — would be helpful. The media should also report more positive and hopeful stories.

But in this moment, we should ponder how we think about and respond to people with severe mental illness. We need either to get them to seek treatment, or force treatment on them. And that will require all of us to resist stigmatizing what we don’t understand.

I’m so glad there are people like Ms. Saks out there, putting a positive – and rational- face on Mental Illness. Perhaps if, as she suggests, more of us can come forward and put a more positive face on this topic, the social stigma might begin to be put into a slightly less hysterical perspective.

And yes, I just had to add that. We’ll blame it on impulse control, because it’s expected of me:)

Fae – Writing Prompt – White Room, One Door

This writing prompt brought up some interesting stuff…We are asked to imagine that we are in a totally empty room with white walls, ceiling and floor. There is a door in one of the walls.
Here’s where I went with it…

A white sterile room with padded walls
Straight jacket folded neatly
On the floor of my mind
But for me, the door that leads out is unlocked.

The solution seems simple
Open the door and walk through to freedom
Yet the reality is so much more complex
For the invisible ties that bind me here are discernible and strong.

I alone hold the key to my shackles
And still it seems as elusive as the
Door to my liberty. Unlock myself,
And an invisible maze blocks my way.

Ope the locks, walk the maze, through the door.
The tools lay at my feet, concealed in hope
Wrapped in effort, and with just a little work
I can pass these intangible barriers.

And step out into the light of awareness
And the substantial world of being

Fae – “Who are you?” said the Caterpillar. (part 3)

Continued from yesterday’s post:

“In crisis”. How does one decide if they are indeed “in crisis” Is it anger? Depression? Anxiety? Does one need to reach to point of being suicidal? Homicidal? Or might crisis simply be defined as the point at which one goes from being independently viable to needing help to function? The psychiatric group I was joining needed to know if I was in crisis, so they could assess whether I needed a psychiatric evaluation and possible intensive psychological care, or just a psychiatrist to monitor and prescribe meds. Perhaps I’m not as self-aware as I’ve prided myself on being. Perhaps I didn’t see the avalanche rolling down the snowy slope behind me, but at the time I thought I’d be fine, and told them I could wait three months to see a psychiatrist for upkeep, I was not, indeed, “in crisis”. Yet, over the next few weeks, my anxiety and depression continued to grow until I found myself behind a car that had cut me off, and the driver made a motion in his rear-view mirror at me – a finger twirling around his ear, the universal sign for ‘crazy’. On a normal day, I’d roll my eyes and and blow it off, move on, but on this day I got furious and started to shake. I had an acutely visceral reaction. Let me assure you, this is not a normal reaction from me, but apparently he had pushed the wrong button at the wrong time. And through the course of the day, I couldn’t shake it. I became more anxious, agitated and out-of control as the day progressed, and by early evening I had the realization that I was, indeed, in crisis. Didn’t know what it meant before, but I felt comfortable saying I was there now. I called the psychiatric group back, let them know, and they switched me to their Outpatient Program, who agreed to see me the following Monday. No three month wait for me.

One psych eval later, it was determined that I wasn’t a danger to myself or others, I was not deranged, I was not a psychopath or a sociopath, and did not need residential treatment. Although he said he’d like me there every day during the week, I wasn’t able to attend, as the kids were just getting out of school for the summer and I needed to be at home at least a few days a week. Th e doctor and I agreed that I would attend an intensive outpatient program, one step down from “Partial Care” (just below inpatient). I faced this with some trepidation, feeling that the cognitive work I’d been doing for years that had kept my head above the churning waters of my depression and anxiety were enough, but I agreed to go. After all, I had to agree that I was apparently in crisis.

I showed up to my first week excited about the prospect of getting some help, but rather nervous about surrounding myself with people who couldn’t possibly understand where I was or intellectually relate – after all, I *had* been working on myself for years, despite the rut in which I currently found myself. How bright and self-aware could ‘these people’ be?

I left the first day in a daze. The program offered an array of classes, on topics like self-esteem, relationships, trauma, boundaries, perfectionism, anxiety, body image, grief and loss, as well as CBT (Cognitive Behavioral Therapy) and DBT (Dialectical Behavioral Therapy). They offered Yoga, art, and creative writing (something I hadn’t done in many years, that was an incredibly positive outlet for me in the past). And people who shared these classes with me not insane, not loony, not crazy, not wandering around aimlessly talking to themselves…but struggling, like I was. People who wanted to be well, and wanted help. Bright, lovely people. We were being given a chance at self-awareness beyond anything I’d dreamed possible in my life – and my mantra has *always* been to grow, change, and evolve.

Living in a small, tight-knit Judeo-Christian suburb had always made me feel different, alone, isolated. There were so few people to whom I could relate. I had finally found my peers. Was I going to take them all home with me, introduce them to my family? No, of course not. But I never felt judged. Not once. Not for my religion, not for my mental illness, not for my political viewpoints, not for the size of my ass. Outside of my family, I was experiencing real, relevant acceptance on a scale larger than I ever had.

I bought myself a decent 3-ring notebook and separators, and took notes furiously at class, highlighting handouts and taking in all I could. I found the depression was lightened significantly on the days I went, although I often found myself in an agitated, yet somehow positively anxious state (sounds like an oxymoron, but it felt more like mania. I am not, however, Manic-Depressive). I gained insights on my actions, and the lengths I’d find I’d had to reach to protect myself from past, untreated Post Traumatic Stress – some of which I’ve written about here in my blog previously.

I’m headed to class before too long now, but I wanted to finish this post before I left. I’m still here, in Wonderland, but I’m finding my way to the key which opens the door to a life which I can live productively. Of all the things of worth to me in my growing 3-ring binder are the pieces I’m writing in my creative writing class. I want to share the the following with you, I think it puts into perspective this experience for me. Our writing prompt was looking out the window and writing down what we saw:


Lush green arms extended
To envelop me
Pondering why I hide inside
Entombed in my temperature-controlled
Concrete walls

My soul yearns to run to her
Inhale her earthly essence
And rest my head
On the bosom of creation
Slowing my heartbeat
To match hers

But fear locks my being
Inside man’s invention
The illusion of safety
Smothering me in blissful ignorance

I will listen for her
In the rustling of leaves
And the intoxicating smells
Of her fragrant flowers
And know that one day
I will lay safe in her arms
Once more