Comments on: Fae – Sample 504 plan for school-age children with Celiac Disease

By: Melissa

Melissa — Fri, 22 Jan 2010 23:19:26 +0000

THANK YOU for posting this!!! Celiac is RAMPANT in my family, and I have long-suffered from an auto-immune myself, for now diagnosed as Rheum Arth. I say for now, because my father has CD, I have many symptoms, but am antibody negative… and have trouble finding a doc willing to do an endoscopy to look further. So for now I live with daily debiliating pain as I attempt to mother my babies… and of course onset was my first pregnancy, again typical for onset of CD. I also have 2 antibody positive siblings (out of 4 kids!) that are for now disease free. Most of all, however, I have two kids that I know are prone, as the disease extends through my family line, as well as my hubby’s. My daughter already suffers from SEVERE soy and milk allergies, and I had NO clue that when she goes to school it was her RIGHT to be protected! How amazing to also find this valuable info in a Pagan blog! Many thanks again! Best to you and Gillian!

By: Tracy D

Tracy D — Wed, 13 Jan 2010 17:49:23 +0000

I foresee a future sometime soon when all foods/ snacks/ craft items/ etc in a school will have to be peanut free, soy free, gluten free etc. It would really make sense for the schools to implement this. Then there would be less worry about allergic reactions, special diets and health issues. And it wouldn’t hurt any of the kids. It would also be REALLY NICE if they actually offered vegetarian options for children. As of right now, my 4 yo who refuses to eat meat just ends up eating his veggies and bread every day. How is that serving him a nutritious meal? NO protein at all. (sorry, that’s my beef with the school here right now! LOL)

I certainly hope your daughter’s school listens to reason soon. It is ridiculous that you have been trying for 3 years to have her dietary and health needs met!
Tracy D´s last blog ..I Knitted!

By: Fae

Fae — Wed, 13 Jan 2010 15:47:04 +0000

Reluctant isn’t the word I would use:) Still, this is the standard 504 that’s being used all over the U.S., so they can fight it, but it will be very expensive for the school system to spend money in court. We’re ready in case that happens, but of course I’d like Gillian taken care of as soon as possible. This has been dragging on for three years, and the terms like ‘gross misconduct’ are being bandied about. Again, we won’t even go there if Gillian’s 504 gets passed, and we can simply move forward. I’m not one to hold a grudge.

Bridgett, did you write up your plan yourself, or did the school do it for you?

Tracy, 97% of people with Celiac are still undiagnosed…the schools are going to have to handle this, because Gillian’s the first of many to come…

By: Bridgett

Bridgett — Wed, 13 Jan 2010 14:41:25 +0000

We have something very similar to this for Parker, only his is for gluten/casein/soy.

Still, this is MUCH more detailed and MUCH better than the one I’ve written. LOL

Please keep us updated. I’ll be interested to hear how the school responds to all these things. In my experience, although they’re required by law to do so, most schools are very reluctant to implement these types of plans. Bah.

Good luck!

By: Tracy D

Tracy D — Sat, 09 Jan 2010 01:33:15 +0000

I’ll keep my fingers crossed that they see reason! There are enough children who are on gluten free diets anymore that they need to have SOMETHING in place!

By: Fae

Fae — Sat, 09 Jan 2010 00:57:25 +0000

I haven’t gotten them to implement this yet, but I’ve prepared it for the meeting…believe me, when this gets implemented, you’re going to see me do a happy dance all the way at your house:)

By: Tracy D

Tracy D — Fri, 08 Jan 2010 22:12:35 +0000

That is amazing! The fact that you have been able to get the school to implement this is impressive. Good work and I hope that they stick to the plan!
Tracy D´s last blog ..Soup, Snow and Sauce